13th August 2009 Thursday
16:30pm
Well its looking more and more likely that we will be going home on sat morn! They have moved him to full orals so they have locked off one of the lines in the hickman. They are going to hold the feed tonight and will be pulling out the nasogastric tube tomorrow morning. We will be getting a meeting from the nutritionist about food when we go home. They took blood for cultures to test for HHV6 so if nothing grows by sat morning then we are homeward bound!
The staff here are amazed at how quick his graft has taken, and his recovery is going in leaps and bounds. He truly is Super Jake!
Thank you all for your good vibes and thoughts for Jake.
16:45pm
Just saw the docs. We are going home sat!
Jake and I are joking about the house being too quiet so we'll have to take a machine home so that we get the same noises at home .. ;)
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14th August 2009 Friday
Well it is now our last night here in the bubble. Its all set - we have spoken to the pharmacy for all his meds and the how, when and what. We saw the nutritionist on what we were allowed to feed Jake at home. We are now set, though we will be coming back every Monday, Wednesday and Friday for a couple of months. This will be so he can get another immunosuppresant through the IV and so they can check his counts in case he needs transfusions and also to refill the next batch of medicines.
We are all excited to be going home and Jake is already looking forward to seeing everyone at Christmas.