Saturday
We arrived and I brought Kai with me because Doug had his bootcamp training session this morning. Dianne came to pick Kai up from the hospital. Poor thing - he really wanted to stay with us.
We are in the old transplant room with a corner bath. Anyway we are back!
Friday
It has been different being in here this time. Doctor Tiedemann has been in to see Jake three times this week, and it feels strange to have this much attention.
Having our own bath has been great - I've been able to have baths with Jake which relaxes both of us.
We didn't think we were going to be here more than a week, so Doug didn't take Wednesday off and I didn't visit Kai. I feel really bad now because we were told that we are going to be in here until Jake has three negative blood tests for the HHV6 and the second virus, CMV. They only test him twice a week and each one takes about 3 or 4 days to analyse (the culture has to grow the virus to a visible level) so we will now be in for at least two more weeks, and realistically we might be lucky to be home for his birthday on the 1st of October.
We are now going to get back into our transplant routine as this is looking like a long stay - Doug will do Wednesdays with Jake so Bibi can visit Kai, and Doug will spend Friday night and Saturday with Kai at Mum's place. Doug and I will also hopefully be able to spend Sunday afternoon and night together at home with Marj and Dave's help.
Because Jake's rash hasn't gone away, they plan to do a skin biopsy early next week to determine its cause. This will require getting him high on relaxant drugs and presumably cutting some of his skin off. What fun.